the social network for those
living with multiple sclerosis
Guest post by Jeannine Czop. When people ask me how I’m doing, like many people, I always reply “fine”, or “good days and bad days, but I’m doing good”. Those are my default answers, for my friends, family and doctor. I don’t think they want to know I really feel. In light of the tragic news … Continue reading Story of HOPE: MS and Depression
Today’s guest post is by Nicole Lemelle of My New Normals. “Of course there is no formula for success except, perhaps, an unconditional acceptance of life and what it brings.” ~ Arthur Rubinstein Did you know that acceptance is a choice that you have full reign over? Now they tell me! I do have some … Continue reading Guest Post: A Piece of Peace with MS
By Elizabeth Salas, MPH, Teratology Information Specialist, MotherToBaby California “My husband and I have been trying to conceive for years, and we’re finally expecting. What can you tell me about the medications I’ve been taking?” This question is one we receive every day on our MotherToBaby phone line. On this particular day, I was … Continue reading Can Muscle Relaxants, Corticotropin, or Dalfampridine Be Used During Pregnancy and While Breastfeeding?
What MS Isn’t Guest post by Barbara A. Stensland There’s plenty written about what MS is, but what isn’t it? It’s not: An ‘easy’ illness (I’m probably not the only person to be told, ‘Well, thank goodness it’s nothing more serious, eh?’) An excuse – it is what it is and I won’t be apologising for … Continue reading What MS Isn’t
MyMSTeam Guest Blog Post by: Lindsey Miller Santiago As a person with MS, I understand the importance of connecting with others who are also living with this disease, and I wanted to share information about an exciting new research initiative that is powered by people with MS.
Survivor’s Guilt and MS Awareness By, Kathy of FUMS According to Wikipedia, “Survivor guilt (or survivor’s guilt; also called survivor syndrome or survivor’s syndrome) is a mental condition that occurs when a person perceives themselves to have done wrong by surviving a traumatic event when others did not. It may be found among survivors of combat, natural disasters, epidemics, among the friends and … Continue reading Survivor’s Guilt and MS Awareness
When we hear that MS is “no big deal,” and we should be “doing fine,” we are hurt. We feel dismissed, ignored, and belittled when we hear these things, because we have all suffered so much with this illness. We may have “invisible symptoms,” things no one else can perceive, but because so much pain … Continue reading Feeling misunderstood with MS? You aren’t alone!
Can I Breastfeed While Treating My MS? By Elizabeth Salas, MPH, Teratology Information Specialist, MotherToBaby California Welcoming a new baby brings a lot of excitement as well as questions, and every mom wants her new bundle of joy to get the best start possible. One of the best things a mom can … Continue reading Can I Breastfeed While Treating My MS?
In December 2014, we asked MyMSTeam members, like you, to participate in a survey about what matters to them in MS. We sent this survey because we believe that you should have a voice in how new MS treatments are developed and how companies prioritize the MS symptoms to tackle next. All the responses were … Continue reading MyMSTeam Results Are In: Here’s What You Had to Say About Living with MS
“Be patient. Wait. No rush. You have plenty of time.” How many times during your life have you heard these words of wisdom being uttered by those around you? I don’t think I can count. I have always been a very determined, sometimes slightly “manic” person when I have my focus set on something … Continue reading The Luxury of Time, By Guest Blogger Meagan Freeman